Vivência emocional familiar em situação de terminalidade de cinqüentenários e sexagenários hospitalizados

Abstract

This study refers to the emotions that come from the family living with a situation of terminal disease of a loved you aged between 50 and 70 years old. The general objective of this research was to identify the emotional stages showed by patients with terminal disease, as well as the emotional stages showed by their relatives as Elisabeth Kubler-Ross. The empiric reserch follows the Qualitative Methodological Presuppositions and Reference from Bardin s, from previously defined categories, with data categorized according to the emotional stages identified by Elizabeth Kubler-Ross. Content Analitics. The reserch was realized in Porto Alegre (RS), in Hospital São Lucas da PUCRS , with samples composed by 7 pacients, aged between 51 and 66 and 11 relatives aged between 28 and 60 years old. The Expression of Coercion Scale and semi-structured enterview were used.It was found that, on enterwied population, the emotional stages are no directly related with illness duration, sex, religion or marital status. The family and the patient do not share the stages simultaneously, although some moments may coincide. The spouses or companions that dont share the cares of the patient get closer to the stage of acceptance; all sons had some grade of negation at the moment of the enterwiew. Those who share the role of primary caregiver experienced a greater or lesser degree of intensity the stage of denial, as well as all the children of patients. The degree of relatedness showed no significance, but the degree of closeness betweenpeople who followed or even just visiting the patient influenced the emotional experienceof this, as did the influence of the patient with the family. When evaluated the expression of coercion presented by the participants admitted it was found that the majority preserved their autonomy regarding decisions related to health care and possibly expressed themselves about the process of terminal. Some expressed no compulsion to have delegated decisions for their family and feel socomfortable, so easy on the resolutions concerning their treatment. Therefore, the family is closely bound to the first emotional stages lived by the patient. The manner it makes itself present, and not only with quantity of people around the patient, influencing on the way how each patient leads with its terminality. To take good care each patient is to important to take good care of the family.